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CKDOPPS News

CKDopps pilot study in Brazil was completed in May 2013 and the longitudinal study is expected to launch in July 2013

Retrospective Germany data collection started in 2010 and continues through 2013

Longitudinal study in Germany is expected to launch in 2013

Longitudinal study in France is expected to start in 2013

Pilot study is expected to begin in China in 2013

Welcome to CKDOPPS

Welcome to CKDopps

Advanced chronic kidney disease (CKD) and the transition of patients to end-stage renal disease both pose high clinical risks and carry with substantial health care related costs. Reliable evidence is needed about the impact of treatment options on patient survival, quality of life, delay/avoidance of dialysis, and cost analysis related to treatment. Arbor Research has launched the Chronic Kidney Disease Outcomes and Practice Patterns Study (CKDopps). The CKDopps is an international, prospective, nephrology clinic-based cohort study that aims to serve as a research platform to identify practices associated with best outcomes for patients with advanced CKD.

Unlike the ESRD patient population, which is well captured in various registries, the CKD patient population is not well studied in nephrology practices. There is a great deal that is not known about both the patterns in care and costs for this population which will reflect the experience of a large number of private insurers and major differences in how they pay providers.

CKDopps Profile

CKDopps builds on the success of the Dialysis Outcomes and Practice Patterns Study (DOPPS) that has been conducted since 1996. The CKDopps team is a collaborative research relationship among experts in France, Germany, China, and Brazil, that uses its international scope to facilitate comparisons of nephrology practices in different countries. CKDopps examines variations in care for patients with advanced CKD to identify the most successful treatment practices, up to and including the transition to dialysis. These findings will provide important new insights for informing patients, clinicians, policy makers, and other stakeholders regarding best treatment practices. The overall goal is to develop an evidence base for the effective treatment of advanced CKD, thereby improving care and outcomes for future patients.

Recent Publications

Implementation and first results of a German Chronic Kidney Disease Registry. Clin Nephrol. 2013

A large network of German nephrologists studied German chronic kidney disease (CKD) patients to develop an evidence base about the course of CKD. Data collected will be used to study CKD treatment variation and the most effective practices under routine care for the treatment of advanced CKD. This study, part of of the Chronic Kidney Disease Outcomes and Practice Patterns Study (CKDopps), shows the first results of a German national electronic registry of nephrology clinic data. Registry data will serve as a resource for future observation of CKD patients in Germany.